Sorry for the lapse, everybody! My 10 month old girl sure is a wonderful distraction!
Two weeks ago I nipped back to the UK to visit with Bob & Clare, excited that he was now living back at home, sleeping in his own bed and reduced to an outpatient 3 days/week at Rookwood. You’ve by now seen the photos from that visit in my last post – very encouraging and wonderful to see Bob, Clare & Holly as a unit again.
We had a great visit. I flew into Bristol again, rented a car and drove straight to Cardiff where I picked Bob up from rehab and drove him home. He was patiently waiting for me at Rookwood (what, me late?? never!) and was looking great. He’s obviously at an advantage in his own home and looked well-rested and full of energy. He was also excited to see me again.
You know, Bob is very much himself so very little time after such a traumatic accident. His speech is coming, though very slowly at the moment. It makes for some tough days, as he has difficulty naming objects (at home, in the shop and elsewhere) and works very hard to remember & re-learn vocabulary, yet he is every bit in the fight. I’m extremely proud of the lad.
And perhaps you wouldn’t believe it if I just told you, so I included photos of Bob welding at the shop. Yes, welding; and as he’s reached legendary status as a welder in his many years of experience, rest assured this is one talent he certainly hasn’t lost! And their shop is one busy place – orders are pouring in. Check their website again to see what it is they do.
You will also have seen from the photos the extent of Bob’s skull that was removed; from certain angles it’ll quite certainly take your breath. But Bob is comfortable with his appearance. He knows he must always wear a helmet until a plate can be fit to cover his brain and he has logically accepted that he will not be afraid of public reaction to his condition; it is after all his condition and he cannot escape it by hiding. So he waits for a plate…
And it appears that by NHS hands, he could wait a very long time indeed.
Now you can bitch about the NHS, eff and blind them all you like, but the NHS is in fact designed to care for the greatest number of people in the most efficient way possible. By its very nature, it relies on the law of averages. With respect to base level care, it remains one of the best health systems in the world. Yet there are gaps everywhere in the system into which patients who are not ‘average’ fall and the system fails them. Bob’s time in the Neuroscience ward was not his first run-in with such failures and he is currently in yet another.
He has been told it will likely take more than a year from now until he will be fitted with a plate. He has been told he is at no more risk than any the rest of us for brain swelling, aneurism or other complications of the brain; yet there are simply not enough surgeons to go around and he has been placed on the list. This list is over a year long. Such is the fate with many in the system (and not simply the NHS, either). This limits Bob’s activities greatly. Without a plate in his head, he is constantly at risk of physical damage to the section of his brain not covered by his skull.
So the option of private surgery is now on the table. Clare has been on the case to find alternatives to the system and has spoken with several families who have undergone the procedure privately. Her enquiries however in Cardiff have resulted in appalling conduct on behalf of the very consultants who make the decisions for Bob’s surgery under the NHS. Suffice to say, Clare and Bron were both snubbed and coldly handled simply by raising the question of Bob’s plate, private or under the NHS.
So that’s where we are. As a side note, Bob’s memory is still intact enough that he remembers what food he likes – I tried to pull a trick or two on him, as have others, twisting the facts as it were to create a ‘better Bob.’ “Yeah mate, you love tomatoes. Don’t you remember??” LOL – good luck! He’s in great form and not having a bit of that!!
All my best Bob & Clare – from Mama, Papa & Babydawg!!!